Last week I had the chance to visit several people involved with disability. I met with gracious doctors and therapists from a leading rehab hospital, I spent time with the self-giving mom and caregiver of a young man with quadriplegia, and I met some new people too. All positive experiences for which I am grateful.
You know that Christmas is a great time for family and friends to get together. In Julie's and my case, we cannot have family or friends with children in. The Christmases that we’ve had the children and grandchildren in, I ended up in the hospital with pneumonia. So, we have to have the family in only when the weather is warm. I am not sure how this affects the other quadriplegics, but some of my difficulties could be with my age.
As we approach the holidays, I find myself with mixed feelings. I’m excited about my recent engagement to a wonderful man, and I’m looking forward to spending time over the holidays with our children and grandchildren. However, I am saddened that my time with InvoTek is coming to a close. My upcoming marriage means that I will be relocating to NE Arkansas, necessitating my leaving InvoTek at the end of January. Joy and sorrow mixed together!
Last weekend I met several people at the Abilities Expo in Houston that were exceptional. I met a rocket scientist who works 20 hours a week and uses his eyes to slowly type out messages because he can’t talk. I met Nikki who was so excited to find a way to type into a computer more easily. But the person who touched me most deeply was a mom.
As a wife and primary caregiver to my late husband George, I am all too aware of the physical, emotional and mental stressors involved. I was all too guilty of having the "I CAN DO IT MYSELF" attitude.
There is an old African proverb, to the effect, “it takes a village to raise a child.” Children are considered a blessing from God for the whole community. The same idea comes through in Ecclesiastes 4:10 "For if they fall, one will lift up the other…".
[This post is also on our forum] I need to apologize for not being on here for a while. I got caught up in school projects that took up a lot of my time and then that was complicated with some medical problems. I believe in this forum, and I think it is a great way for us to share information.
The following days after my injury are mostly a blur due to the pain medication I was on but the morning I was scheduled for surgery, one moment stands vividly clear! As I was being pushed to the operating room, I looked at my mom and said, “We’ve got a lot of tough days ahead, huh?” Mom just smiled at me as the tears flowed down her cheeks. I then said, “Well, let’s just hope our bad days aren’t on the same day.” Ironically, I had no idea what that would mean to me later!
A lot has happened during the past few weeks. I had the opportunity to visit Khiry Neal twice at Children’s hospital in Little Rock. He is doing well with our AccuPoint head tracking system. I can’t tell you how happy this makes me – and him! I also met Khiry’s grandmother. She has a presence that is extraordinary. When I told her that we wanted Khiry to become part of our Be Extraordinary program and that I promised to help as much as we possibly can, she looked straight into my eyes. I had the sense that she was searching me, trying to figure out if I was one of those people that makes promises lightly and then doesn’t follow through.
Some of us are born caregivers; some come to it out of happenstance. For some it is a learned skill. No matter how it comes about, it is a task not to be taken lightly. This is a story about just one!